The DataSHIELD Team

Name Affiliation  CountryContribution to the DataSHIELD Project
Leire Abarrategui Martinez
Newcastle University
UK
Research Assistant in Biostatistics on the DataSHIELD project with knowledge in omics field. Collaborator in LITMUS project developing infrastructure and functions for sharing and analysing data safely. Contributor to implement functions for omics data analysis and responsible for function documentation and testing.  
Dr Demetris Avraam
Newcastle University
Cyprus
A core developer of DataSHIELD statistical functionality and provider of support to DataSHIELD users. Developer of statistical methodologies for secure multi-party computations and privacy-preserving data visualisations. Focusing on statistical approaches, including data synthesis and anonymization techniques, aiming the mitigation of disclosure risk associated with sensitive data without degrading the scientific value of the data. 
Professor Harald Binder
MIRACUM Consortium Lead; University of Freiburg
Germany

Coordinator of ”Use Case 2” in the MIRACUM project, which aims at jointly analysing data of several German university hospitals, with DataSHIELD as main infrastructure, with a research focus on deep learning and more generally machine learning techniques in DataSHIELD.

Tom Bishop
MRC Epidemiology, Cambridge University
 UK
 Infrastruture and deployment
Fredrico Bonofiglio
University of Freiburg
Germany

Statistical methodology

Professor Paul Burton
Newcastle University and Public Health England
UK
Principal investigator and lead of DataSHIELD project. Jointly leads statistical functionality team. Centrally involved in incorporating generalized linear modelling (glm) and generalized linear mixed modelling (glmer) into DataSHIELD, with multi-study inference based either on full joint likelihood applied to Individual Patient Data (IPD) or through centrally controlled study-level meta-analysis. 
Dr Olly Butters
Liverpool University
UK
 Infrastructure development
Rui Camacho
RECAP-Preterm, INESC TEC
Portugal

Statistical methodology; function developer

Dr Isabel Fortier
Research Institute of the McGill University Health Centre (RI-MUHC)
 Canada

Data harmonization expert and principal investigator of Maelstrom Research. Developing methods and tools to improve rigour and cost efficiency of the data harmonisation process. Generation of scientifically founded harmonized datasets is essential to optimise the DataSHIELD users’ experience.

Hugh Garner
Newcastle University
UK

Devops, load testing and user interfaces. Particular interest in data visualisation methodology

Gonçalo Gonçalves
RECAP-Preterm; INESC TEC
Portugal

Researcher at INESC TEC working for RECAP Preterm and EUCAN-Connect. Developing and maintaining the CORAL distribution that leverages on software containers to reduce the effort needed to get the Obiba and DataSHIELD infrastructure up and running both for development and production.”

Julian Gründner
MIRACUM Consortium; FAU
Germany

Infrastructure development, deployment

Sido Haarkma
University Medical Centre, Grooningen (UMCG)
 Netherlands

Software developer at the UMCG working for the MOLGENIS team. Currently working on the Armadillo, a different backend for DataSHIELD and the cohort catalogue. These are tools to make it easier handling the governance issues using DataSHIELD. 

Professor Yann Joly
McGill University
Canada
Adviser on the ethical and legal aspects of DataSHIELD covering applicable data privacy and ethical standards across global jurisdictions.   
Dr Elinor Jones
UCL
UK

Statistical methodology

Bartha M Knoppers

 McGill University
 Canada
 

Ethical and legal development

Stefan Lenz

MIRACUM Consortium; University of Freiburg
Germany

Researcher and software developer working on implementing deep learning methods in DataSHIELD, integrating functionality from the Julia programming language. Also involved in the development and setup of the DataSHIELD infrastructure for the GESA and MIRACUM project.

Yannick Marcon

Epigeny
France
Opal and DSI Lead

Dr Andrei Morgan

RECAP-Preterm; INSERM; UCL
France

Community engagement

Professor Madeleine Murtagh

Glasgow University
UK
 Data Governance Lead 

Jose Ornelas

RECAP-Preterm; INESC TEC
Portugal

Researcher at INESC TEC working for RECAP Preterm and EUCAN-Connect. Developing and maintaining the CORAL distribution that leverages on software containers to reduce the effort needed to get the Obiba and DataSHIELD infrastructure up and running both for development and production.

Angela Pinot de Moira

University of Copenhagen
 Denmark
 DataSHIELD adoptor in LifeCycle

Professor Juan Ramón González Ruiz

Barcelona Institute for Global Health (ISGlobal) 
Spain
Associate Research Professor in Bioinformatics and Statistics. Expertise in omic association analyses and developing new statistical methods and bioinformatic tools to fill missing heritability in complex human traits (https://github.com/isglobal-brge/). Leading scalable omic data analysis in non-disclosive federated analysis. Focus on developing and documenting dsOmics package into DataSHIELD

Artur Rocha

RECAP-Preterm; INESC TEC
Portugal

Infrastructure development, deployment

Dr Patricia Ryser-Welch
Newcastle University and Open University
UK
Research Associate in Data-Science. Particular expertise in distributed software architecture, algorithms and computation, scalable machine learning and bio-inspired methodologies. Leading on user interaction design and on developing innovative features required for non-parametric statistics and scalable machine learning in non-disclosive federated analysis. Centrally involved in developing DataSHIELD’s conceptual and testing frameworks.
Paula Silva
RECAP-Preterm; INESC TEC
Portugal

Statistical methodology; function developer

Elaine Smith
Newcastle University
UK
Communications and Research Administrator for DataSHIELD. 
Professor Morris Swertz
 UMCG
 Netherlands
 EUCAN-Connect lead
Alex Westerberg  
Newcastle University       
UK
Research Assistant in Statistics on the DataSHIELD project. Major contributor to online presence: keeping the website up to date; maintaining the accuracy of wiki articles; and following current developments. Demonstrator for beginners’ workshop. Developer and tester of new statistical analysis functions for use within DataSHIELD. 
Dr Stuart Wheater
Newcastle University and Arjuna Technologies
 UK
Involved in all aspects of the development and maintenance of the DataSHIELD systemin particular managing the release, continuous integration and quality assurance processes.
Dr Rebecca Wilson
Liverpool University
UK
 Software sustainability
Dr Daniela Zöller
University of Freiburg; MIRACUM Consortium; GESA-Projekt
Germany

Statistician developing statistical methodology in the context of DataSHIELD with a focus on variable selection, machine learning, and local prediction models. Additionally supports clinical researchers in using DataSHIELD in the context of the GESA and the MIRACUM project.

 
 

The DataSHIELD project would not have matured and developed in its current form without the contributions the following individuals:

Name Affiliation  

Hasan A. J. K. Al Radhi

Newcastle University

Isabelle Budin

Norwegian Institute of Public Health

Yutong (Sam) Cai

Imperial College London

Professor Vincent Feretti

Ontario Institute of Cancer Research

Dr Amadou Gaye

University of Leicester, University of Bristol

Jennifer Harris

Norwegian Institute of Public Health

Dr Susan Hodgson

Imperial College London

Dr Julia Isaeva (Kutschke)

Norwegian Institute of Public Health

Dr Joel Minion

University of Leicester, University of Bristol

Dr Chris Newby

University of Leicester

Dr Neil Parley

University of Bristol

Dr Anne Marie Tasse

McGill University

Dr Jonathan Tedds

University of Leicester

Professor John Thompson

University of Leicester

Dr Andrew Turner

University of Leicester, University of Bristol

Professor Edwin van den Heuvel

Eindhoven University of Technology

Dr Susan Wallace

University of Leicester

Dr Wilma Zijlema

University of Groningen