The DataSHIELD Team
| Name | Affiliation | Country | Contribution to the DataSHIELD Project |
|---|---|---|---|
| Leire Abarrategui Martinez |
Newcastle University |
UK |
Research Assistant in Biostatistics on the DataSHIELD project with knowledge in omics field. Collaborator in LITMUS project developing infrastructure and functions for sharing and analysing data safely. Contributor to implement functions for omics data analysis and responsible for function documentation and testing. |
| Dr Demetris Avraam |
Newcastle University |
Cyprus |
A core developer of DataSHIELD statistical functionality and provider of support to DataSHIELD users. Developer of statistical methodologies for secure multi-party computations and privacy-preserving data visualisations. Focusing on statistical approaches, including data synthesis and anonymization techniques, aiming the mitigation of disclosure risk associated with sensitive data without degrading the scientific value of the data. |
| Professor Harald Binder |
MIRACUM Consortium Lead; University of Freiburg |
Germany |
Coordinator of ”Use Case 2” in the MIRACUM project, which aims at jointly analysing data of several German university hospitals, with DataSHIELD as main infrastructure, with a research focus on deep learning and more generally machine learning techniques in DataSHIELD. |
| Tom Bishop |
MRC Epidemiology, Cambridge University |
UK |
Infrastruture and deployment |
| Fredrico Bonofiglio |
University of Freiburg |
Germany |
Statistical methodology |
| Professor Paul Burton |
Newcastle University and Public Health England |
UK |
Principal investigator and lead of DataSHIELD project. Jointly leads statistical functionality team. Centrally involved in incorporating generalized linear modelling (glm) and generalized linear mixed modelling (glmer) into DataSHIELD, with multi-study inference based either on full joint likelihood applied to Individual Patient Data (IPD) or through centrally controlled study-level meta-analysis. |
| Dr Olly Butters |
Liverpool University |
UK |
Infrastructure development |
| Rui Camacho |
RECAP-Preterm, INESC TEC |
Portugal |
Statistical methodology; function developer |
| Dr Isabel Fortier |
Research Institute of the McGill University Health Centre (RI-MUHC) |
Canada |
Data harmonization expert and principal investigator of Maelstrom Research. Developing methods and tools to improve rigour and cost efficiency of the data harmonisation process. Generation of scientifically founded harmonized datasets is essential to optimise the DataSHIELD users’ experience. |
| Hugh Garner |
Newcastle University |
UK |
Devops, load testing and user interfaces. Particular interest in data visualisation methodology |
| Gonçalo Gonçalves |
RECAP-Preterm; INESC TEC |
Portugal |
Researcher at INESC TEC working for RECAP Preterm and EUCAN-Connect. Developing and maintaining the CORAL distribution that leverages on software containers to reduce the effort needed to get the Obiba and DataSHIELD infrastructure up and running both for development and production.” |
| Julian Gründner |
MIRACUM Consortium; FAU |
Germany |
Infrastructure development, deployment |
| Sido Haakma |
University Medical Centre, Groningen (UMCG) |
Netherlands |
Software developer at the UMCG working for the MOLGENIS team. Currently working on the Armadillo, a different backend for DataSHIELD and the cohort catalogue. These are tools to make it easier handling the governance issues using DataSHIELD. |
| Professor Yann Joly |
McGill University |
Canada |
Adviser on the ethical and legal aspects of DataSHIELD, covering applicable data privacy and ethical standards across global jurisdictions. |
| Dr Elinor Jones |
UCL |
UK |
Statistical methodology |
|
Bartha M Knoppers |
McGill University |
Canada |
Ethical and legal development |
|
Stefan Lenz |
MIRACUM Consortium; University of Freiburg |
Germany |
Researcher and software developer working on implementing deep learning methods in DataSHIELD, integrating functionality from the Julia programming language. Also involved in the development and setup of the DataSHIELD infrastructure for the GESA and MIRACUM project. |
Epigeny |
France |
Leader of the OBiBa project and owner of the Epigeny consulting company. In charge of the design and implementation of the DataSHIELD middleware: the DataSHIELD R and Java APIs, and the Opal data warehouse. Maintainer of various R packages (DSI, DSOpal, DSLite, resourcer, opalr) available in the official R packages repository. Committed to finding innovative solutions for big and complex data handling in DataSHIELD. |
|
RECAP-Preterm; INSERM; UCL |
France |
Community engagement |
|
Glasgow University |
UK |
Data Governance Lead | |
RECAP-Preterm; INESC TEC |
Portugal |
Researcher at INESC TEC working for RECAP Preterm and EUCAN-Connect. Developing and maintaining the CORAL distribution that leverages on software containers to reduce the effort needed to get the Obiba and DataSHIELD infrastructure up and running both for development and production. |
|
University of Copenhagen |
Denmark |
DataSHIELD adoptor in LifeCycle | |
Barcelona Institute for Global Health (ISGlobal) |
Spain |
Associate Research Professor in Bioinformatics and Statistics. Expertise in omic association analyses and developing new statistical methods and bioinformatic tools to fill missing heritability in complex human traits (https://github.com/isglobal-brge/). Leading scalable omic data analysis in non-disclosive federated analysis. Focus on developing and documenting dsOmics package into DataSHIELD | |
RECAP-Preterm; INESC TEC |
Portugal |
Infrastructure development, deployment |
|
| Dr Patricia Ryser-Welch |
Newcastle University and Open University |
UK |
Research Associate in Data-Science. Particular expertise in distributed software architecture, algorithms and computation, scalable machine learning and bio-inspired methodologies. Leading on user interaction design and on developing innovative features required for non-parametric statistics and scalable machine learning in non-disclosive federated analysis. Centrally involved in developing DataSHIELD’s conceptual and testing frameworks. |
| Paula Silva |
RECAP-Preterm; INESC TEC |
Portugal |
Statistical methodology; function developer |
| Elaine Smith |
Newcastle University |
UK |
Communications and Research Administrator for DataSHIELD. |
| Professor Morris Swertz |
UMCG |
Netherlands |
EUCAN-Connect lead |
| Alex Westerberg |
Newcastle University |
UK |
Research Assistant in Statistics on the DataSHIELD project. Major contributor to online presence: keeping the website up to date; maintaining the accuracy of wiki articles; and following current developments. Demonstrator for beginners’ workshop. Developer and tester of new statistical analysis functions for use within DataSHIELD. |
| Dr Stuart Wheater |
Newcastle University and Arjuna Technologies |
UK |
Involved in all aspects of the development and maintenance of the DataSHIELD system, in particular managing the release, continuous integration and quality assurance processes. |
| Dr Rebecca Wilson |
Liverpool University |
UK |
Software sustainability |
| Dr Daniela Zöller |
University of Freiburg; MIRACUM Consortium; GESA-Projekt |
Germany |
Statistician developing statistical methodology in the context of DataSHIELD with a focus on variable selection, machine learning, and local prediction models. Additionally supports clinical researchers in using DataSHIELD in the context of the GESA and the MIRACUM project. |
The DataSHIELD project would not have matured and developed in its current form without the contributions the following individuals:
| Name | Affiliation |
|---|---|
|
Hasan A. J. K. Al Radhi |
Newcastle University |
|
Isabelle Budin |
Norwegian Institute of Public Health |
|
Yutong (Sam) Cai |
Imperial College London |
|
Professor Vincent Feretti |
Ontario Institute of Cancer Research |
|
Dr Amadou Gaye |
University of Leicester, University of Bristol |
|
Jennifer Harris |
Norwegian Institute of Public Health |
|
Dr Susan Hodgson |
Imperial College London |
|
Dr Julia Isaeva (Kutschke) |
Norwegian Institute of Public Health |
|
Dr Joel Minion |
University of Leicester, University of Bristol |
|
Dr Chris Newby |
University of Leicester |
|
Dr Neil Parley |
University of Bristol |
|
Dr Anne Marie Tasse |
McGill University |
|
Dr Jonathan Tedds |
University of Leicester |
|
Professor John Thompson |
University of Leicester |
|
Dr Andrew Turner |
University of Leicester, University of Bristol |
|
Professor Edwin van den Heuvel |
Eindhoven University of Technology |
|
Dr Susan Wallace |
University of Leicester |
|
Dr Wilma Zijlema |
University of Groningen |