Who uses DataSHIELD?

Current DataSHIELD Implementations

  • EUCAN-CONNECT: Developing a federated FAIR platform enabling large-scale analysis of high-value cohort data connecting Europe and Canada in personalized health. Collaborating with 173 European population-based cohort studies with ~2.5M participants in total. 
  • RECAP preterm: Research to improve to health, development and quality of life of babies born preterm. Includes 20 population-based cohort studies from Europe. 
  • LifeCycle to develop new strategies for optimizing early life that will help to maximize the human developmental potential for current and future European generations. Includes 40 European cohort studies.
  • GESA (GEnder-Sensitive Analyses of mental health trajectories and implications for prevention) Grant Number: BMBF FKZ 01GL1718A.
  • MIRACUM (Medical Informatic in Research and Care in University Medicine). A national German network of 10 University Hospitals to improve healthcare and strengthen Biomedical Informatics in Research and Education. Grant number: BMBF FKZ 01ZZ1801B.
  • MINDMAP: An integrated database infrastructure for research in ageing, mental well-being, and the urban environment. Longitudinal studies from 11 countries covering over 35 cities linked to databases of area-level environmental exposures and social and urban policy indicators. DataSHIELD utilised at a subset of sites. 
  • InterConnect (MRC Epidemiology Unit, Cambridge) InterConnect is developing a global collaborative network for diabetes and obesity research, piloting DataSHIELD to facilitate a new approach to data sharing that is secure, scalable and sustainable. This includes data from 43 studies.
  • the BioSHaRE-EU Healthy Obese Project for the federated analysis of 10 European studies including data from the National Child Development Study.
  • the BioSHaRE-EU Environmental Core Project for the federated analysis of data from 6 European studies including UK Biobank.
  • ENPADASI (German Institute of Human Nutrition) will pilot DataSHIELD to deliver an open access research infrastructure that will contain data from a wide variety of nutritional studies, ranging from mechanistic/interventions to epidemiological studies including a multitude of phenotypic outcomes that will facilitate combined analyses in the future.

Consortia Setting up DataSHIELD Pilots

  • SPIRIT (University of Sherebrooke) intra-uterine determinants of child health and development and on perinatal health services in Quebec, Canada (3 studies) and Shanghai, China (1 study).

DataSHIELD Integration and Scoping Projects

  • BRISSKit (University of Leicester) integrated DataSHIELD with i2b2 data warehouse for biomedical data.
  • ARDC England (University of Southampton) and ARDC Wales (University of Swansea).
  • AMASED project in collaboration with F1000Research scoped secure post publication data analysis
  • AMASED project in collaboration with the British Library scoped the secure text analysis in the digital humanities

Other Interested Groups

  • British Geological Survey
  • Royal College of Physicians